Monday, November 11, 2013

A Return to the Hospital

Monday Nov 11. 4:30 am
Elijah developed a cough early yesterday morning.  Probably something a sibling shared with him as we have had a lot of coughing this past week at the house.  Throughout the day his breathing got harder for him.  We headed to the ER following 3 snow plows as winter arrived today in Alaska.  He has been admitted with respiratory distress, possibly pneumonia.  Sweet baby is on oxygen, antibiotics, and fluids in an iv. Steroids may be next to help open his airways.  The doctor said, "Unless he has a miraculous recovery, he will be here a few days."  Well, we have seen several of those before.  :)

10:30 am
Upper right lobe pneumonia is the diagnosis.  Finally got a very slow feed running so hopefully he can catch up on his sleep.  Maybe I can, too.  But probably not.  I would rather sit and hold this precious child from God.

6:30 pm
Elijah is finally sleeping.  His feed will continue very slow until tomorrow.  He really misses eating, as he was taking about an ounce by mouth 5 times daily.  When we arrived at the ER they put him on 2 liters flow oxygen.  He is down to .3, maybe he will be off of it tomorrow.  It's nice seeing some familiar faces from NICU caring for him now in pediatrics.
Taste and see that the Lord is good.

Tuesday Nov 12. 2:00 pm
Sweet baby is sounding better today.  His breathing treatments are every 4 hours and he is still on .3 oxygen.  His feed was increased from 10 ml/hr to 20.  It must get to 40.  We love seeing familiar friendly faces that took care of us in NICU.  This medical facility and personnel have been a great blessing.

Wednesday Nov 13. 5:00 pm
Elijah is doing much better!  Thank you for your prayers.  His feeds are up to 30 ml/hr and his oxygen at .1.  Tried to take him off oxygen this morning but he still needed some.  His breathing treatments are just 'as needed' and he sounds great. We play in the afternoon  while he coos and smiles.  Still some coughing when he is tired, but so much better.
Praise God for healing!

Thursday Nov 14. 6:00 pm
Sweet baby loves the mobile the nurse put above his crib.  He looks and smiles and coos. So incredibly sweet!  The only thing keeping him in the hospital is his oxygen requirement. They try taking him off every few hours, but is is not ready.  I tried talking them into letting him go home with oxygen, so he could travel to the Bible Bee to see his sister compete, then see family, but they aren't going for that plan.  He won't be able to fly for a few months. And though there are tears of disappointment, we smile and coo and thank God for His provisions.  And we pray for those going on without us.

Friday  Nov 15. 7:00 pm '
I.V. is out and he finally had a bath!  It was time.  The antibiotics are causing a sore bum, so sweet baby enjoyed relaxing in the water.  I asked for probiotics and they started today.  All that is left is getting off oxygen.  He goes between .1 and .2  Hopefully soon!
And they sing the song of Moses the servant of God, and the song of the Lamb, saying, Great and marvellous are thy works, Lord God Almighty; just and true are thy ways, thou King of saints.

Saturday Nov 16  5:00 pm
We are just waiting for sweet baby to come off oxygen.  The doc today said that after 5 days, they may talk about going home with oxygen.
I will wait upon the Lord.

Sunday Nov 17  9:00 pm
Yep, we are still here.  Waiting.  Oxygen requirements the same.  Elijah had a fun bath today and got  mommy all wet.  We cuddled and played and prayed for those traveling.  Oh how we miss them!
Death is dead, love has won, Christ has conquered;
And we shall reign with Him, For He lives: Christ is risen from the dead!

Monday Nov 18  6:30 pm
Elijah stayed off oxygen for a couple hours today.  Well, he was off it longer than that as he has become quite the expert at getting the cannula off his face.  I had no idea when we first arrived at the hospital that we would be here this long.  I thought "a breathing treatment, maybe cough medicine, and we should be home by morning."  Ha!  Today we were the only ones in our wing, so they moved us to a more populous localeAnd, they started feeding mommy!
Indescribable, uncontainable, You placed the stars in the sky and You know them by name.
You are amazing God.  

All powerful, untameable, Awestruck we fall to our knees as we humbly proclaim
You are amazing God!

Tuesday Nov 19  7:00 pm
Sweet baby has been off of oxygen all day.  If only he can stay off overnight...
Blessed be the name of the Lord!

Wednesday Nov 20  1:30 am
Sweet baby is now 'Mr. Happy preparing for the Midnight Olympics Track and Field events'. So glad he feels better and is staying off the oxygen!  Who knew one could exercise so much in the middle of the night and be so jubilant?
Let everything that has breath praise the Lord!

Thursday Nov 21  4:3 pm
Home again, home again.  Jiggety jig.

Saturday, November 9, 2013

Elijah's Birth Story - the Narrative

Elijah was born dead after being at the hospital for only 15 minutes.
We almost went to the mall first.

We arrived at the hospital and I sent Mom and the littles to get a bite to eat.  They would meet us in a room later to see the baby being born.  The older girls went with Ronnie and I.
"I am about to deliver."
Apparently the nurses did not take me seriously.
Walk down a long hallway.  Pause for contraction.  Get weighed.  Sign some papers.  Change into hospital gown.  Pee in a cup.
"Are you kidding me, I am about to deliver a baby here."
"Well, we will check you soon to see if you need to be sent home to labor and come back."
"Umph, that ain't happening."
"Let's hook you up to monitors."
"I cannot get heart tones. We gotta get her in a delivery room."
"No, we have to go now."
Being ran down the hallway on a stretcher I vacillate between hollering and telling the nurses, "I am usually a very nice person."
"Epidural or natural?" was asked in the middle of a contraction, during the high-speed race.
"Natural,"  sweetly answers my lovely daughter, who has read all the midwife books.
"EPIDURAL!" I say holler, after having read the same books.
I am trying to not push.
"She is pushing.  Check her."
"Oh *#@$!!  There's the head.  We gotta get to a room."
"There's not time.  Push."
"I CAN'T!Yeah, I am not big on pain.
Next thing I know I feel his little self all 9 lbs 6 ozs come sliding out.
Great, I can relax now.  
Wait a minute, why is it so quiet?
The room fills with medical personnel.  Seventeen of them.
"What's going on?"
"What's going on?"
"It's going to be ok," compassionately answers a daughter.
I look over and he is not moving.  I look at my other daughter.  "It's going to be ok," she says with fear and trembling.  Ronnie is speechless.  I cannot hear nor understand the quiet talk of the nurses surrounding Elijah.  They are giving him shots.  They are trying to resuscitate him.  A couple of them are overwhelmed and have to leave the room.
"We are working on him."
15 minutes pass.
"How long will they keep this up?"
20 minutes have gone by.
"How long will they keep this up?"
The only man in the room, besides Ronnie, is standing at my feet, pulling on the umbilical cord. 
"Has anyone ever hit you?"
He looks at me and laughs. 
"Because I am about to hit you."  Dude, you don't know how serious I am.
He continues to stare.
"This is better than cable, eh?"  Yeah, I'll humor the guy.  Then maybe he will stop staring and pulling. The girls swear he is the maintenance man.
A doctor comes over, "Your baby is very sick.  He has been without oxygen for over 20 minutes.  We don't know how long he has been without a heartbeat.  His cord was wrapped around his body and he has aspirated meconium.  We don't know why this has happened.  We will do all we can.  Do you have any questions?"
"Are you the best person to be working on him?"
"I believe I am."
"May God guide your hands and your decisions."
"Tell him 'bye'."
They wheel him over and I place my hand on his tiny chest.
"Elijah, mommy loves you.  Get better."
He startled, opened his eyes for a second, and looked at me.

The next time I saw sweet baby he was hooked up to a plethora of machines.  He was alive.  For how long, we did not know.  The doctors and nurses kept saying they were sorry. Sorry?  Sorry for what?  He is in God's hands.  God determined this before the foundation of the world.  We are trusting in God's Sovereignty.  You would have thought we had grown 3 heads the way some of them looked at us.

We continued to befuddle the doctors
During the first week, one entered the room cautiously and looking very nervous.  Our pastor was in the room.  Again.
"The DNA test results have come back."
"And?"  I am expecting something horrific.
"It shows positive for Trisomy 21."
"Ok, and?"  Still waiting for a big revelation.
"Do you know what that means?"
"Yeah, he has Down's Syndrome."  I wish he would just tell us what the problem is.
"Do you understand what Down's Syndrome is?"
"Yeah, he has an extra chromosome, no big deal," I hear Ronnie say.
"Look, if that is his only issue, it's not a problem."
"Uh, that's all."  Cue puzzled doctor leaving the room.
No, we did not know that he had Down's before he was born.  Yes, I had prenatal testing.  No, if we had known beforehand, it would not have changed anything.  Well, I might have read a couple of books every book I could get my hands on.

Over the next few weeks, God provided abundantly.  Mom was here for 3 weeks.  Family and friends prayed and asked others to pray.  They sent cards and gifts.  Friends brought meals and games to our house and to the hospital.    One of the first pictures I saw from home was a huge bouncy house inflated in my living room.  That made me smile.  Darrell and Bobby brought their RV to the hospital for us to use.  Rena planted seeds with Josiah.  Her boys came and played ball with Joshua.  Kelly brought tulips and planted them.  We were blessed.

Back at the hospital Elijah continued his fight for life.  There were a couple of doctors that would come in every couple days with "We are going to have to talk about if what we are doing is just prolonging the inevitable.  We can keep him alive, but we have to think about quality of life."  No.  I am not having that talk.  God, if you want him, take him.  I am not strong enough to have that talk.  "We will have to talk about shutting all this off.  He is on a lot of support.  He should not be alive with all this support."  I would just tell them that he was in God's hands.  They said we would talk later.

After one of these 'talks' I closed the curtain around myself and wept.  I was weary.  I was tired.  It was so hard seeing that precious soul fight for life.  A nurse came over to console me.  "Did the doctor come in and talk to you."  I nodded.  "Well, she didn't tell you anything you didn't already know, right?"  I must have gave her 'the look' because she left and I never saw her again.

The hardest times were when the younger children would ask, "When is he coming home?"  I didn't know what to say.  I didn't know if he would come home.  "I don't know.  He may not come to our house.  We may only be home together in Heaven."  I wanted them to know that this is not our home.

Weeks passed and one of the doctors mentioned going home.  Home?  Is that possible?  I am still in the survival mode!  We actually didn't know the day were we going home until that day.  But what a glorious day it was!  A close second to the first time I got to hold him.

God continued to heal Elijah.  God continues to heal and grow him.  We are thankful.  We are grateful.  We are amazed at His providence.  We are overwhelmed with His grace, mercy, love and outpouring of His people.  I don't know why God chose to heal Elijah.  I weep with the families who have lost children.  I know it is not fair.  I don't know why God chooses to heal some and not others.  But I do know that He is God.  He is faithful, He is just, He is good and He is true.  And if Elijah's story points others to Him, To God be the Glory!  It will all have been worth it.  Every tear, every prayer.

Wednesday, November 6, 2013